Le Bonheur Day 3

William is still having lots seizures, but we think they are starting to decrease. He had to have his blood drawn this morning in order to check the levels of the medicine in his blood. It was a lot lower than what Dr. Wheless wants so we had to add a dose of Depakote soon after that. The medicine tends to make Will very sleepy at such high doses. But we do think it is helping, but won't know the full effectiveness of the medicine until after a week of him being on it.

This morning Will took an IQ/developmental test. He enjoyed every minute of it. He really liked the lady administering the test. It was a series of games, objects, drawing, and matching. It was so fun to see him smiling and proud of himself. He was having some absence seizures during the test so sometimes he was confused on what she was asking him to do. And because of the extra dose of medicine he had to take even more sleepy.

Will spends a lot of his time in the playroom. Will's favorite thing to do right now is put all the puzzles together. He also likes for Patrick to push him around on the ride-on toys. 

Dr. Wheless came in and spoke with us about the frequency of Will's seizures and the medicines side effects and such. He is encouraged, as are we by the some what small difference they seem to be making so far. Every time he comes he asks Will if has been enjoying eating. We talked about Will's scheduled VNS surgery again today. Dr. W. says if we were to go ahead and pursue that it wouldn't be unreasonable. That is scheduled for next Friday at Vanderbilt. We have a tough decision to make, but not today.

After Will fell asleep Patrick and I explored the hospital. It is new, just a little over 6 months, I think. We found the chapel area and I was touched at all the ways they had tried to represent all religions. There are beautiful paintings, quiet rooms, praying rooms. As we came to this area we immediately quit talking. It had a very reverent feeling to it. We have been very impressed with Le Bonheur.

Overall Will had his best day since being admitted. Even though he is sleepy, he is happy! Really, really happy. This evening we saw a huge decrease in seizures. We are grateful. Really, really grateful.