Tuesday has been more of the same. Lots of seizures. After viewing the video of Will along with his ongoing EEG, Dr. W. has decided to change up Will's medicines. Depakote and ethosuximide. He feels encouraged that this combination should make a pretty good impact. Will it be good enough though we don't know. Will is still happy and pretty easy to get along with.
A few highlights from the day:
-The playroom is Will's favorite place. Even though the floor looks like your typical hospital floor it is some kind of absorbent flooring so if a child falls on it like during a seizure it absorbs the impact. Pretty cool and a lot less worry for mommy and daddy.
- Will had his first Peanut Butter and Jelly Sandwich in 2+ months! He even ate the crust. When he saw the sandwich he said, "I get to eat these whole 2 sandwiches?!" It was one sandwich cut in half. On the ketogenic diet, Will would be lucky to get a quarter of a slice of bread, spread so heavy with butter and oils it would practically be soggy.
- Right before Will's nap the Arkansas State football players stopped by to check on him. They were really BIG guys. Will kept his eye on them and smiled and even showed them his muscles. I can't believe I didn't get their picture with him.
- Will received a beautiful soft fleece blanket that some one makes a donates for the children in the EMU. He loves snuggling with it.
- Still a lot of seizures, but we think we can see a small decrease. We are cautiously optimistic.
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2 comments:
Hooray for special flooring, PB&J's, AR State football players, and ladies who make soft blankets for children they don't even know.
Cute post! He sure is a cute little boy:)
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